Whether you call it physical therapy or physiotherapy (PT), many of us suffering with Charcot Marie Tooth (CMT) have had to seek that kind of help for injury or to help us restore and/or maintain physical functionality while fighting this neuromuscular condition....
Like many of us living with Charcot Marie Tooth Disease (CMT) finding ways to overcome our set of unique challenges in order to stay healthier and remain as physically able as possible is a constant battle. Nordic Walking (NW), noted as a fitness trend by Harvard...
Most of us suffering with Charcot Marie Tooth (CMT) develop contractures. Contractures are defined as a stiffening of joints resulting in loss of movement of the joint and musculoskeletal deformities (most commonly of the feet and hands). They occur because as muscles...
Elisabeth Kilroy, PhD, is director of MDA’s neuroMuscular ObserVational Research (MOVR) Data Hub, which gathers medical and genetic data on several neuromuscular diseases to help researchers gain better understanding of the diseases and design effective clinical...
Lily S., 16, of South Carolina, remembers what it was like to play and be active as a child. “I was able to participate in gymnastics after having extensive surgery.” When she was 4 years old, Lily was diagnosed with Charcot-Marie-Tooth disease (CMT) type 1E and...
