Seeking Participants for a New CMT Clinical Trial (for the US only) A Chance to Help Advance Treatment

Seeking Participants for a New CMT Clinical Trial (for the US only) A Chance to Help Advance Treatment

by Teresa Carroll | News and Updates

The sponsor of the study is NMD Pharma A/S. If you’re living with Charcot-Marie-Tooth (CMT) disease, specifically CMT1 or CMT2 subtypes you may be eligible to participate in an exciting new clinical trial. NMD Pharma, a biotechnology company, has received approval...
Physical Exercise as a possible Therapy for CMT1X

Physical Exercise as a possible Therapy for CMT1X

by Teresa Carroll | News and Updates, Research

New Physical Exercise study published in November, 2024 issue of the Journal of the Peripheral Nervous System The results of a TIN-sponsored study to determine the effects of exercise on the progression of CMT1X, using a mouse model of CMT1X, was first published as...
For CMTers Like Me Its Important to Just Keep Moving

For CMTers Like Me Its Important to Just Keep Moving

by Teresa Carroll | News and Updates

For Steve O’Donnell, founder of Therapies for Inherited Neuropathies, those are words to live by. He calls them his life’s slogan. The slogan helps him self-motivate to spread awareness of Charcot Marie Tooth disease and to raise money for CMT research. It’s guided...
The Benefit of Physical Therapy for Charcot Marie Tooth Patients

The Benefit of Physical Therapy for Charcot Marie Tooth Patients

by Teresa Carroll | Physical Therapy

Whether you call it physical therapy or physiotherapy (PT), many of us suffering from an inherited neuropathy like Charcot Marie Tooth (CMT) have had to seek that kind of help for injury, or to help us restore and/or maintain physical functionality while fighting this...
How Nordic Walking Improves Physical Quality of Life for Those Suffering from Neuromuscular Conditions Like Charcot Marie Tooth Disease

How Nordic Walking Improves Physical Quality of Life for Those Suffering from Neuromuscular Conditions Like Charcot Marie Tooth Disease

by Teresa Carroll | Physical Therapy

“Helping those with CMT remain physically able as we work to find a cure!” Like many of us living with Charcot Marie Tooth Disease (CMT) finding ways to overcome our set of unique challenges in order to stay healthier and remain as physically able as possible is a...
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