Founder’s Mission

Founder’s Mission

 

We would like to welcome you to the website for Therapies for Inherited Neuropathies (TIN), and invite you to engage with us in our efforts to bring therapies and treatments to Charcot-Marie-Tooth patients. Borne by our personal experience of living with CMT, our aim is to develop and make available therapies that members of this community can use to manage their neuropathy while treatments for these diseases are developed.

We are joined by an excellent board and group of advisors to provide us with guidance and direction. Each are accomplished experts in business, medicine, or science, and have committed to help us access best practices to reach our goals.

Available on our website, you’ll find a series of physical therapy instructional videos. We created these videos with expert guidance specifically for people with CMT, to improve their functional mobility in daily life. We hope you will take the time to try the exercises, and if effective for you, incorporate them into your regular care plan. We will be adding to the current physical therapy video series – please check back regularly for other approaches you can add to your daily routine.

Our foundation will also support research to develop new treatments when an approach shows promise. As TIN initiatives advance and reach milestones, you will be able to read about it at www.tin-us.org.

Sincerely Yours,

Steve and Sherri O’Donnell