CMT NEWS
Accelerating Answers for CMT Patients: Groundbreaking TIN Research Projects!
Read what researchers working with TIN are doing to provide answers for Charcot Marie Tooth disease patients!
Therapies For Inherited Neuropathies Announces 2026 TIN CUP for CMT
Therapies for Inherited Neuropathies, is proud to announce the date for this year’s TIN Cup. The 2026 TIN Cup will take place on Monday, September 28th and will be held at The Elkridge Club in Baltimore, MD.
Topline Results: NMD’s Phase 2a Study of Ignaseclant with CMT patients!
NMD Pharma announces topline results from its Phase 2a study of ignaseclant in Charcot-Marie-Tooth disease Types 1 and 2 Exploratory Phase 2a study showed...
TIN-sponsored researcher recognized by Peripheral Nerve Society with prestigious award
Erva Bayraktar, Ph.D. was recently awarded the Peripheral Nerve Society's Laura Feltri Basic Science Fellowship at its annual meeting, held in May in...
Study to Repurpose MS Drug Shows CMT1X Benefit
In a TIN-sponsored study newly published in the May issue of Neuromuscular Disorders (https://doi.org/10.1016/j.nmd.2025.105345) the Martini group now reports...
Seeking Participants for a New CMT Clinical Trial (for the US only) A Chance to Help Advance Treatment
The sponsor of the study is NMD Pharma A/S. If you’re living with Charcot-Marie-Tooth (CMT) disease, specifically CMT1 or CMT2 subtypes you may be eligible...
Physical Exercise as a possible Therapy for CMT1X
The results of a TIN-sponsored study to determine the effects of exercise on the progression of CMT1X, using a mouse model of CMT1X, have now been published on-line in Experimental Neurology. The article, entitled Physical exercise mitigates neuropathic changes in an animal model for Charcot-Marie-Tooth disease 1X, describes the results of a study performed by the Martini Laboratory at the University of Würzburg (Germany). They examined different regimes of repeated running exercise for the ability to improve measures used as clinical outcomes in CMT patients, most notably effects on mobility, balance and pathology (progressive nerve damage).
For CMTers Like Me Its Important to Just Keep Moving
For Steve O’Donnell, founder of Therapies for Inherited Neuropathies, those are words to live by. He calls them his life’s slogan. The slogan helps him...
Therapies for Inherited Neuropathies Announces New Addition to the Advisory Board
Mario Bortolozzi, Ph. D. I am an associate Professor in Biophysics at the Department of Physics and Astronomy "G. Galilei" at the University of Padua in...
Letter from CMT Patient – Success with Therapy
Email from CMT Patient from June 2023 Hello Mr. O'Donnell, It is a pleasure to be put in touch with you. I am a 39 year old man with 1A who has been working...
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